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KRISGO

05/10/26 5:48 PM

#825344 RE: Lykiri #825343

I received the same from GoFundMe today, as well as the one below from Jade.

The last week hasn’t been kind, but today marked the beginning of my private infusion protocol designed by Dr Saskia Kloppenberg and the Medical Wellbeing Group. A treatment created to support my overall wellbeing and work alongside chemotherapy to help strengthen my immune system in preparation for DCVax.

Sitting here today connected to drips in my own home feels surreal. Cancer has taken so much from me lately, physically, mentally and emotionally but I’m still here, still fighting, and still holding onto hope for what comes next.

The £19,000 fee for this infusion package would never have been possible without every donation, every share, every message, every fundraiser and every ounce of support you have all shown me. I am forever grateful beyond words. Truly. You have helped me reach this stage of treatment and I will carry that gratitude with me forever.

The vaccines are the next stage of this journey and I promise to keep fighting the same way all of you have fought for me to get here. ❤️

Thank you for standing beside me through the hardest chapter of my life.


https://www.gofundme.com/f/please-help-us-give-Danielle-the-gift-of-time
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DocLee

05/11/26 2:54 AM

#825373 RE: Lykiri #825343

Lykiri, I'm somewhat surprised (and concerned) that Joel's family is having to seek funds via GoFundMe for Joel's treatment with DCVax-L for recurrent Glioblastoma. He is (it is reported) under the care of Christies Hospital in Manchester, the leading "cancer hospital" in the North of England, and there can be no doubt that his medical team should be aware that funding for the treatment could be obtained via the "Individual Funding Request" (IFR) route. This was established in April last year when the MHRA decided to include DCVax-l in the IFR system. As many people on this board will know, this is a mechanism that enables currently unlicensed treatments (but which are very likely to be accepted for use by the NHS in the very near future) to be used by the NHS but for which routine funding is not available. Joel's medical team can apply to the "Integrated Care Board" (ICB) for funding for Joel's treatment. Apparently they have not done so or they have done so but the application has been turned down. If so, why?