Glioblastoma is a devastating disease, and the need for better treatments is unquestionable. But none of the issues being discussed here are created by posters. Message-board commentary does not determine or hinder approvals, filings, or outcomes. Those decisions rest entirely with the company. If there are concerns about delays, regulatory strategy, or progress, they ultimately belong with NWBO’s management — not with people asking questions or raising concerns.
Sorry about your friend but we all have lost people. Now onto actual motives; If you really believe in this therapy why aren’t you screaming from the rooftop to get this in the hands of a company with proper governance and resources? Why aren’t you outraged there’s been no pediatric trial since L has no side effects? Why would you threaten skeptics who are trying to change things for the better by insisting on transparency?
Seeing as you feel so strongly, do you believe, in principle that both the NHS and its most vulnerable patient should be protected from any and all financial fraud ?
Yes or No.
And due you further believe that it is only right that the passage of this 'cancer treatment' should be held up in the Regulatory process, whilst independent investigators leave no stone unturned?
So sorry for your loss. I agree with everything you said and have had a statistically impossible personal experiences with this horrible disease. 2 high school classmates and my wife's father and father-in-law who survived 8 years with SOC + Optune. We had his funeral yesterday. 3 out of 4 of these amazing human beings with family and friends that did NOT receive DCVAX-l have now passed. The one who did is still alive and living as normal a life (sans the seizures, insomnia and brain damage) is still alive 13 YEARS later with no tumor recurrence or regrowth. The paid bashers on this board have said the most horrible things about these amazing peole who have suffered more than anyone can possibly imagine. I don't give a crap whether the 10-20 anonymous OTC message board bashers who hold no position yet post here 24/7/365 believe me or not. You don't owe these evil pathetic "people" a second of your precious time. Put them on ignore and move on. Our lives our short even under the best of circumstances. My New Year's resolution is to minimize the amount of time I spend on energy vampires, and maximize the quality time I spend with the people and causes that I love, as this is the ONLY thing that matters in the end. Take care.
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