thank you for sharing. some good news with all the BS going on is very welcome
she was told she would live 12 to 18 months and she is about to hit 18 months with no signs of tumor progression. People need to know about this so more lives could be saved.
"I am in a fortunate position and I will be getting my 5th Vaccination in November. This is my insurance policy."
Update Today 30th Oct 2023
My latest scan has come back clear and stable. This is such a relief and allows me to breathe for a few more months until the next MRI scan.
It's a surreal and sobering experience waiting each time to find out what the result is going to be. Sitting in the waiting room anticipating what's coming next. Each time I put it out of my mind and hold my breath for what feels like the longest time. Hearing the doctor say 'your scan is clear' is a lovely, lovely feeling. I can feel my whole self relax and feel happy in that moment.
I asked the consultant what it meant. Am I in remission? Am I cancer free? Can I say I am better now?
'Unfortunately with this kind of Cancer the best we can say is that you are stable and there is no sign of recurrence at present'. I suppose I already knew this was the answer and it just cements the fact that I will be forever battling to keep in this 'stable' state of being.
For now I can celebrate the small win. I am almost 18 months into my diagnosis. Originally I was given a prognosis of 12 to 18 months. I am within a whisper of passing that milestone. My next goal is 24 months. It's going to happen.
The doctor confirmed that Glioblastoma is still one of the rarest and underfunded forms of cancer there is. Glioblastoma is still considered extremely rare, Ironically I have seen and read so many stories about individuals who succumb to this illness and others who continue to defy it. Glioblastoma needs funding.
I am in a fortunate position and I will be getting my 5th Vaccination in November. This is my insurance policy. Almost there but still a long way to go to reach my goal.
How lucky I am to be able to avail of this life prolonging treatment. I am still here. I am not giving up. I am going to beat this beast.
This is only possible because of the support, kindness, generosity and goodwill that I have been shown.
Thank you as always for taking the time to read about my progress and for continuing to believe in miracles.