Thank you all for your kind thoughts and prayers. She did very well from her diagnosis at the end of 2011 until about 2017 and then she went into decline. Her neurologist oncologist believed it was the radiation treatment which was having a delayed impact on her. She was 66 when diagnosed. She had a 2nd total resection during March of 2019. She followed with Avastin for about 3 months but it almost killed her. I think it caused bleeding in her GI tract. She had 1 cyber knife treatment during December of 2019. She could not tolerate any further treatment after that. I would recommend New York Presbyterian for neuro oncology treatment.
Her last MRI did show a small tumor, but she most likely did not die directly from GBM. She did die indirectly due to the treatment weakening her so much. Most GBM patients don't suffer the long term effects of radiation since they don't live that long. Hopefully, DC-Vax will able to be combined with other immunotherapies to greatly improve outcomes.
I called NWBO after her GBM reoccured during 2019 to see if there was any way she could get DC Vax again. It was not possible. It was only after this time that I researched NWBO and made a small investment and added a little more after May 10th.
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