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PsuLion

06/19/21 11:31 AM

#315794 RE: Pazzo1212 #315791

As a long term investor, I sometimes catch myself with having unrealistic expectations , thinking this is a 100% guaranteed win. It’s not. We’re still waiting for data confirmation. We’re still waiting for the translation of the MOA to evidence of clinical relief in these patients from
A placebo controlled trial.
I am disappointed that this child still has seizures but I don’t know the full story so I continue to await revealing of the full picture. It will be revealed soon enough. The reality is no drug works perfectly well for all patients. Some benefit more than others. I am hoping and praying that A 2-73 is helping more than not. Again , we will know soon enough. Until then, I have a responsibility to not risk what I cannot afford to lose. And to stop dreaming about being a wealthy philanthropist. . I hope it happens. Only God knows if it will.
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tredenwater2

06/20/21 12:01 AM

#315935 RE: Pazzo1212 #315791

It’s also possible she would have more seizures by not taking the drug, and it’s reduced the number of them. Was just hoping it ended them.



Pazzo perhaps she is a Comt S1R or needs to improve her ability to absorb 4 ng into her blood stream. Im sure the lack of bacteria diversification from years of not being able to eat a well balanced diet has had a detrimental effect on her gut.

Prayers go out to all patients that through our trial criteria we are able to find a way to help make all win some instead of some win all!