As someone who had anyphylactic shock and chronic hypoxia after that incident, I can understand your frustration with the medical profession in general. I was told it was "menopause" and "depression" and medicated for that. Then 10 years later it occurred to an observant Physician's Assistant in general practice that the episodes of sweats and fugues that were increasing in severity might be brain damage. Too many doctors only look for easy answers and move on to the next patient in the queue - something that the insurance industry also has to take the blame for.
Now can you answer some of the questions I've been wondering about after reading about Katie? Can the massive loss of motor control be reversed, even partially at her age or are we simply hoping for better controlled seizures and improved cognition?