Sorry about your mom but happy she was able to get DCVax.
My mom was being treated at NYP but despite me asking that the tumor not be preserved with paraffin to have the DCVax option, it wasn’t. Also, the oncologist tended to dismiss my multiple mentions of DCVax. My mom didn’t have GBM, so maybe the oncologist felt it was too remote a treatment route to pursue?
Access to DCVax would have had to have been via compassionate care, and maybe that would have been difficult or not timely enough and not SOC for metastatic bladder cancer?
The oncology team at NYP does genetically sequence the tumors and they promote personalized medicine in general.
Had I known that Dr I had involvement with DCVax treatment I would have at least discussed it with him.
Not being more forceful about the DCVax possibility is a regret and I’ll never know if it would have helped but in my mind it wouldn’t have hurt to have tried that option because of its safety and no side effects, unlike the other remaining options.
I’m happy it was clearly beneficial for your mom and God bless you!
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