I'm currently approaching 5 years post stem cells, I still have quarterly appointments at City of Hope. I do not know if the patients in the trial still see the clinician they originally were treated by, but I would think they all would have quarterly, or at least semi-annual appointments with their oncologist. I suppose someone with more than perhaps 6 years in remission might only come in annually.
At City of Hope patients have annual checkups decades after their treatment, it's honestly something I believe both the Doctors and patients look forward to. Annually they also host a picnic with entertainment for all the BMT patients, donors, and families, it's in it's 43rd year if I remember correctly, and it's attended by thousands. My Dr. is normally the M.C. It's interesting that stem cells are still referred to as bone marrow, and certainly that's where it started. I don't really know when they learned that while they were transplanting marrow, it was the stem cells within it that were doing the work. I don't know if marrow is transplanted any more, but perhaps in some cases it has a function beyond the stem cells alone.
My point is that finding the status of most patients shouldn't be too difficult, I would think their oncologist is pretty well informed, and probably their GP or internist as well.
Gary
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