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Re: kevli33 post# 126403

Wednesday, 10/25/2017 11:47:31 PM

Wednesday, October 25, 2017 11:47:31 PM

Post# of 469766
Great catch! Recall this past year's session was titled "Roundtable 4: Partnerships- successful collaboration between a rare disease foundation and a pharmaceutical company to advance preclinical and clinical research in Rett Syndrome."

A nice write-up of the top 7 lessons learned at the conference included this:

3- Anavex’s CEO Christopher Missling talked about partnering with patient organizations and explained that a year ago they didn’t even know what Rett syndrome was. He credits Rettsyndrome.org CSO Steven Kaminsky for making it very easy for them to test their most advanced drug in a Rett mouse model and for mobilizing resources to help them start a clinical trial when those results where very positive. They plan to start a Phase 2 trial this year. Rettsyndrome.org is a great example of how patient organizations can attract companies to their disease by proactively engaging the industry and understanding how to remove drug development bottlenecks, such as offering access to good animal models.


http://www.draccon.com/dracaena-report/wodcusa2017

I'm wondering what kind of update they'll be able to provide by late April of next year...
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