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Wednesday, 09/27/2023 8:09:03 PM

Wednesday, September 27, 2023 8:09:03 PM

Post# of 300
A post from years back to give people an idea on what Prader Will is like for a family


Whalatane
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Re: ronpopeil post# 160
Thursday, March 14, 2019 6:57:35 PM
Post# of 293
Hi Ron ...yeah it is been a tough hold.
A friends son has Prader-Willi ...insatiable hunger is one thing ...its the violent outburst and aggressive behavior when they are denied food , that make life very difficult for these families and their care givers.

My friend would lock the food cabinets etc ...son would then trash the house ...finally had to be institutionalized .


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