Thank you for this breakdown. I do not have the background to grasp all of the nuance, but after a few years of trying really hard, there is some ability to come somewhere near understanding a small sliver of these things.
I was thinking about it this morning, as a person with no background in medicine or science, I read the information out there and for the sake of this comparison, say that I receive this info as a great song, a really good pop song.
It's difficult for me to know that this catchy pop song is not being played for everybody, it should be! But then I think, how maddening it must be not just to hear the song like this lay-person does, but to have a technical background that provides a greater understanding to allow one to (to go with the comparison) hear and understand the background arrangements, the layers of sound, to be able to appreciate in detail the fullness of the treatment / platform. You would not just be hearing a catchy pop song like I do, but a fantastic symphony (or whatever other arrangement one chooses to represent the harmony of action, it could be any from genre). I can't imagine what it would be like to understand these areas in detail and still see unmet needs go unmet.
Happy Fourth of July!
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