your last email has what looks like something that you copied and pasted from somewhere.
NOPE, it is original from me. Some of the thoughts may have been rolling around here but no copy was intended (I usually give credit, as appropriate).
Seriously, how do the poor folks w/a child who has a rare CNS disease get help?
Experiences I have had in a previous life have left me w/lots of respect and admiration for the Australian culture and work ethic. Would like to see them carry this rare CNS diseases (program) ball for AVXL, before someone else does..
Summary , it is my own original thoughts and wording. Thanks.
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