Nidan, your last email has what looks like something that you copied and pasted from somewhere. Just wondering where that came from. Do you have a link? The link that you posted just came from the MJFF announcement about the presentation. Below is the part I am looking for a link on. Not sure where that info is coming from. Thanks.
The MJFF has strong leadership skills and a positive following WW. They impress as an organization that is focused , using multiple mechanisms to be a visible and effective focal point for solution, not just "LOOK AT ME", but serious management program continuity.
Other such rare disease effort can be seen and heard including RETT- RSD, Autism and a long list serious CNS RARE diseases WW. With continued support from AVXL Australia team and other selected WW RARE CNS DISEASE then not only can a lot of visibility and focus be raised By Dr.M. and the Australian team CNS Rare disease organizations WW might be able to help focus the CNS RARE Diseases in an AVXL-Australian coordinated and effective manner.
If all CNS RARE diseases efforts WW had a collective -effective- focused science effort to collaborate the science work around the universal CNS AVXL S1R collaborative effort (including required ancillary research-trials ) effort then a massive WIN_WIN CAN BE a CNS diseases WW vision based on AVXL core science can be seen. IMO, Australia is dispositioned with AVXL and A WW network to make it happen.
We recognize that the TERM..."RARE CNS DISEASE"' can often be read as ...get in line and good luck.
BUT, if The PD research program is seen as a model ...(how to do...CNS RARE DISEASE pathway ) , then anything is possible. BTW, this may have been Dr.'M's plan all along which can now be seen to take shape using PDD as the core example.
So, an expanded AVXL CNS RARE Diseases program may now have hope and resources to move forward WW. WOW.
