Replies to post #365124 on NorthWest Biotherapeutics Inc (NWBO)

[Lykiri]

If this gets UK approval, I'll say what I've said before, no marketing will be required.

longfellow95,

Fingers crossed!
Anyway, the current situation can be managed much better.

Ria Melvin story....
March 2021

Ria’s diagnosis with a glioblastoma multiforme (GBM) grade 4 came completely out-of-the-blue at the age of 23. She has had two resections, including an awake craniotomy, as well as radiotherapy and chemotherapy treatment, partly through a clinical trial. Ria also raised £170,000 to have IO-vac dendritic T-cell vaccine treatment at a clinic in Germany which, although started, was sadly thwarted by the progression of her tumour and coronavirus pandemic restrictions.

It would have been so much better if I had known two years ago what I know now! I wish I had the knowledge that there are different ways to store and freeze the tumour after biopsy. Standard practice is to freeze tumours in paraffin wax, but this makes it impossible for the tissue to be used in an immunotherapy vaccine in the future. I found out months after my surgery that I could have asked for it to be frozen without chemicals so it can be used for future treatments. I also recently learnt that the standard NHS genetic testing is very basic, I now know you can pay privately for more in depth genetic testing to be carried out to look at a more personalised treatment approach. It seems I am always learning things too late; it feels like the current protocols restrict patients’ options before they have even begun their journey. I believe change is needed urgently.

https://www.braintumourresearch.org/stories/in-hope/in-hope-stories/ria-melvin