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Re: Lykiri post# 365117

Friday, 03/26/2021 6:58:51 PM

Friday, March 26, 2021 6:58:51 PM

Post# of 700898
That's great news, Lykiri.
It shows, for sure, that despite Covid restrictions, UK Specials is functioning, though probably in small numbers and with some painful delays for patients. Quite a few patients from UK and abroad might be in the fortunate position of not having to crowdfund. And these may be getting treatments that we will never hear about.
So there is no real way of calculating current numbers receiving treatment.
Though realistically, it will be small right now, but with the potential for much greater numbers, as Covid restrictions are hopefully eased, and Sawston is licensed.
If this gets UK approval, I'll say what I've said before, no marketing will be required.

And on when the NICE STA gets restarted: That was a nice little hint from your reporting. I would expect NICE to get their submission and restart more or less the same time the formal MAA goes in to the MHRA. And both appraisals to run concurrently.
Then give it ballpark six months from then.
So maybe 3 months plus 6 months.
But don't hold me to that!

I expect you are keeping one eye on developments with Laura N also.

Regards.
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