Replies to post #203779 on NorthWest Biotherapeutics Inc (NWBO)

[doingmybest]

beartrap12,

Sorry to hear about your friend Pete. I cannot PM so I wanted to offer to you to contact me if you wish to via email or tele and I would be fine to provide either one. I have deep personal family experience with TBI. Just a couple of comments:
- clinical trials would be great to research, stem cell therapies seem to hold the most promise if the injury is new
- top rehab centers are very good sources for current info. I live near Philly so here we have Moss Rehab (Einstein Hospital) and Magee Rehab (Jefferson Hospital)
- Walter Reed Hospital was doing significant work with TBI due to the military need to treat it from battlefield injuries

There is a lot to know and a lot to consider while it is all important to have high hope. It is key to understand it typically can be a very long road. I wish Pete all the best.

[iwasadiver]

Beartrap, what was your friend's injury and what is their current state? How long ago was the injury?

[marzan]

my SIL was in another country about 4 yrs ago got knocked down by a motorist left unconscious bleeding head injury for hours and the surgery was done only after a day, half of the brain cells died. Her two daughters are both daughters, one went there, stayed with the mom in a therapy center for about 6 months, sedate her enough on a 15hr flight back home, and ever since she is in a rehabilitation center on maintenance. Just can't think further, such a nice person, life never the same before, imo.

[CogDiss 1188X]

Beartrap - I’ve done a little more digging on recovering from TBI, which is possible because of the brain’s inherent neuroplasticity. It seems like the brain can regain function that was lost due to injury or stroke, including regaining the use of paralyzed arms or legs as well as regaining the ability to speak, in ways that are beyond what I would have thought is possible.

Here’s a link to one of the main guys who worked out some techniques (Edward Taub and constrain-induced movement therapy)
https://www.uabmedicine.org/patient-care/treatments/ci-therapy


I found out about his work from a book I bought on neuroplasticity - pretty amazing stories of recovery from a wide variety of issues due to the brain’s ability to change. The book comes very highly recommended
https://www.amazon.com/Brain-That-Changes-Itself-Frontiers/dp/0143113100/ref=mp_s_a_1_1?ie=UTF8&qid=1545275884&sr=8-1&pi=AC_SX236_SY340_QL65&keywords=the+brain+that+changes+itself+norman+doidge+md&dpPl=1&dpID=51XPRAl0GvL&ref=plSrch

I did a search for “learning how to speak after brain injury” and saw a lot of interesting links. The first one was posted by a guy who had a severe brain injury and relearned to speak and swallow as well as regain use of a paralyzed arm:
https://adventuresinbraininjury.com/relearning-speak-brain-injury-power-speech-language-pathology/

Hope the helps!