It seems there must be some Real World Evidence for blarcamesine efficacy with the OLE trials. How is that all kept secret? Are the patients and their families sworn to secrecy? Do they not know what drug they're on even once it's open-label? If one of these patients with Rett Syndrome or Alzheimer's has noticeably improved, and she visits a neighbor or friend, it's hard to imagine her or her family maintaining the secret. Or is there some grapevine of people who do know how various patients are faring? (There was reference here to one blarcamesine Rett patient improving and that being on the Facebook page of her family support network.) Anybody know how all this works?
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