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CogDiss 1188X

01/19/19 11:40 AM

#209077 RE: ae kusterer #209056

ae, the Stupp interview that Senti posted has some relevance to your friend who was his diagnosed with GBM.

Dr. Stupp: So personally, I would wish that no matter where the patient comes that the pathology is sent out and is reviewed by one of the expert neuropathology centers we have in the country. It’s getting too complex. There may be important implication and consequences, and it takes some expertise, especially with the molecular testing to integrate all of that.



Wishing the best for your friend!
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01/19/19 7:25 PM

#209147 RE: ae kusterer #209056

AE, you wrote:

Texas friend just diagnosed with GBM.How can he get dc vax? and maybe paid for?


Sorry to hear about your Texas friend.
Perhaps to explore:
1. Make patient inquiry here: https://nwbio.com/new-patient-inquiry/ (and follow up with calls to NWBO)

2. Inquire about Right to Try.

3. Inquire about treatment in Germany under Hospital Exemption

4. How it might get paid for? Seems like various patients and family of patients are looking to obtain funds through GoFundMe campaigns.

5. Reach out to principal investigator and GBM surgeon Linda Liau for suggestions.