I read through cancer compass often too and I feel so bad for these people. You're right - so few of them really know their options. It seems as if so many of them are caught off guard by the diagnosis and rush into surgery, only to discover that none of the tumor was saved and they can't enter the DCVax L trial - if they even hear about it. And when they finally do, it's too late.
I think you've lost someone (was it your son?) to gbm, I think? I thought I read that awhile back - anyway, if you did RRR, I'm truly sorry. If I'm remembering it wrong, thank goodness.