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Re: Steady_T post# 462711

Thursday, 06/27/2024 10:51:02 PM

Thursday, June 27, 2024 10:51:02 PM

Post# of 470833
You're right, with no real alternatives, there should be a rush to fill the next Rett Syndrome trial.

It wouldn't hurt to have the Rare Disease Advocacy Movement, RAM, and the Rett Foundation help in promoting Anavex and encouraging patients to sign up. And it's not too late to have them write letters and emails to the FDA demanding access to Blarcamesine, given the poor safety record of Trofinetide.

It's disgraceful, the poor choices these patients are given, to be offered a second rate drug due to a data point on an irrelevant endpoint. SMH.

All my posts are my opinion only and shouldn’t be used for decisions regarding purchasing or selling.