Sir,
Thankyou for your very informative response, for it has guided me as to the next steps that I must take.
Interestingly, after being given just two weeks to live over the telephone by the Clinical Trial Patient Procurement Nurse, upon discharge from Kings College Hospital in March 2015, after being successfully treated for a tiny brain abscess, derived from a tooth infection, I was referred to their arranged surrogate Oncologist.
Who stated that fortunately, he had one place for me left on the very latest NICE Gold Standard Treatment, and that I should consider myself lucky.
As an Inspector, It was in my nature to drill down on the presented ‘facts’. One being that there was never any scanned evidence to show the existence of a brain tumour. ( then or now)
I remained reluctant to proceed with the STUPP protocol. But I relented, as his anger at my refusal wore me down, so soon after surgery.
He refused my request for a scan before the start
Of adjuvant treatment,
A scan was further refused once again by the oncol.at the end of 6 weeks chemo/ radio,
I knew then that there was an agenda at play, that was not necessarily in my best interests.
I then demanded a scan at 6 weeks, as a precondition of me having a follow on temozolomide course.
I finally got a scan, that had previously been refused because ‘pseudo progression’ would have enflamed the multiple tumours’- end quote.
My long overdue demanded scan showed no evidence of GBM4 ( giant cell variant), so I sacked the Oncologist on that very day, ditched all prescribed medication. 9 years ago.
So as a former 2015 ‘gbm4 patient’, I have the absolute right to enquire, and to glean any pertinent info from where I see fit.
I never was I’m any danger of dying back then, despite Kings College Hospital’s attempt to convince me otherwise. And after 3 years of attempted intervention into my life, they finally conceded defeat, by leaving me alone for good.
No I return to get some answers from them.
And for those here that ‘has a friend at Kings’, I caution you that the MHRA’s Investigation Team are looking into that and other broad ranging matters.
And they have been for the last 6 months.
Also to those who suggest that I maybe in legal jeopardy here, for, in their mind, ‘fudding’ NWBO, you are very much Regulator’ly out-gunned in that regard. So put your water pistols away!
And I know that NWBO investors here will really applaud me being open about my Kings College Hospital GBM4 story, because you really ‘care’ about curing this brain cancer, and with it having absolutely nothing to do with getting your sweaty grubby hands on a few dollars !
Do let me know if you want the CHM’s Chairman’sor the MHRA’s CEO’s direct emails !
.. discuss
