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crescentmotor

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crescentmotor

Re: Joseph_K post# 443875

Saturday, 12/23/2023 2:38:47 PM

Saturday, December 23, 2023 2:38:47 PM

Post# of 461495

How unusual is it for a company to sponsor anecdotal info (e.g., those videos) that came from a trial for which no results have been released yet?



Extremely unusual I would think. Sponsoring organizations like this would be expected to go out of their way to avoid doing anything that would potentially offer false hopes to families living with Rett Syndrome. To have these videos come out before trial results are officially released really grabs my attention.
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