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Monday, February 27, 2023 3:16:04 AM
doesnt seem to be related to NWBO. Just a report on a survey. (stoped halfway though since it seems unrelated).
Just in from Hugh Adams:
Thanks to @andrewgregory for bringing this report to the wider public. @braintumourrsch is proud to provide the secretariat for the #APPGBT with @DerekThomasUK as Chair. We must do better for #braintumour patients - this report shows us the pathway to a cure https://t.co/7h8amhcvwZ
— Hugh Adams (@hugh1eadams) February 27, 2023
THE GUARDIAN ARTICLE FROM TODAY
https://www.theguardian.com/society/2023/feb/27/uk-spent-only-15m-pounds-on-brain-tumour-research-in-five-years-after-promising-40m?utm_term=Autofeed&CMP=twt_gu&utm_medium&utm_source=Twitter#Echobox=1677485099
The revelation emerged in a damning report seen by the Guardian that is due to be published this week by the all-party parliamentary group (APPG) on brain tumours after a two-year inquiry.
The APPG report also highlights a “valley of death” in which potential new treatments developed in the laboratory “fail to reach patients” because of unnecessary red tape. Some children are being denied access to clinical trials, and the national brain tumour research database is “not reliable”.
“The sad fact is that brain tumour patients do not have the luxury of time,” Thomas said. “The government must act now in order to recognise brain tumour research as a critical priority, appoint a champion, and ringfence sufficient funds to make a difference.”
The start of something special https://t.co/wyTstmkS1g
— Hugh Adams (@hugh1eadams) February 22, 2022
https://www.braintumourresearch.org/media/our-blog/our-blog/2022/12/16/looking-back-before-looking-forward
As I reviewed my career at Brain Tumour Research, breakthrough was the word of my twelfth year and alongside what is happening at our centres we engaged with the pharmaceutical industry sharing knowledge on the developments of tumour treating fields by Novocure and a vaccine (DCVax) for brain tumour patients being trialled by Northwest Biotherapeutics (NWBio).
We are now crystalising the content gathered into a report and clear recommendations and the sharing of this report and the actions and outcomes arising from this piece of work will form a key part of our campaigning endeavours in 2023.
It is about the visions of british brain cancer treatments going forward and it is written by Hugh Adams for the group, who were facilitating that NWBO management met british politicians last year. He participated with Linda Powers (setting next to her) at the BNOS in Liverpool last summer.
DCVax-L have had an "Oral session" at the APPGBT group.
Bio99 wrote a dedicated article on Reddit regarding the report coming tomorrow.
https://www.reddit.com/r/NWBO/comments/10u5g1s/nwbo_23_day_countdown_to_appgbt_report/?utm_source=share&utm_medium=android_app&utm_name=androidcss&utm_term=2&utm_content=share_button
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