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Wednesday, February 08, 2023 7:31:46 PM
Andreas Rett, a pediatrician in Vienna Austria, first described the condition in 1966. As his writings were in German, they did not become widely known in the English-speaking world.[6] Bengt Hagberg, a Swedish pediatrician, published an English article in 1983 and named the condition after Rett. In 1999, Lebanese-American physician Huda Zoghbi discovered the mutation that causes the condition.
There are organizations that support this syndrome's awareness campaigns and fundraise to support treatment and research. For instance, the Noemie association hosts football competitions for young girls with Rett syndrome. Thierry Breton, an osteopath at the Parisis clinic, is the organizer of this event, which takes place in Cormeilles-en-Paris.Twelve teams will compete in this event. This particular moment has already occurred countless times. It is a soccer competition in support of the group La vie selon Noémi. Shirts from professional footballers Zlatan Ibrahimovic, Adrien Rabiot, Gianelli Imbula, Axel Ngando, and Karl Toko-Ekambi will be among the prizes given away. Two to three children with the syndrome will receive some of the treatment they need in a specialized facility in Barcelona thanks to the money contributed (Spain). This is the story of Noémie, who was born at the hospital in Cormeilles, Paris. The girl's parents founded this organization to aid her and other kids with multiple disabilities and to spread awareness of this condition.
https://en.wikipedia.org/wiki/Rett_syndrome
https://www.anavex.com/rs
Good luck and GOD bless,
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