NorthWest Biotherapeutics Inc (NWBO)

[hyperopia]

Thanks for the condolences hoffman and kind words senti. I’ve shared several anecdotes here about my grandfather’s experience with Glioblastoma over the years. They serve as reminders why many of us are here, and how little hope there has been for anyone diagnosed with GBM. Here’s a couple:

I’ll share a story with you Maverick since you’re new here. My grandfather was diagnosed with Glioblastoma and his oncologist gave him about a year to live. The Optune “helmet” was recommended after standard of care as the only “treatment” available that might extend his life. It cost $20k a month and it wasn’t covered by Medicare at the time. He was not wealthy but his house was paid for and he had some savings. He didn’t want to spend the money because he wanted to leave it for my grandmother to have a comfortable life. My grandmother begged and pleaded with him to pay for it because she was terrified of losing him and being alone since he had always taken care of her. He could never say no to my grandmother. I’ll spare you the ugly details, but he battled one of the worst cancers you can imagine for ten months, and it cost his entire life savings. You might not understand what people are willing to do to live a little longer until you’ve been there.
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Flipper, that is so true. I shared a few months ago that my grandfather died of GBM, and he used the Optune device. My grandfather was not particularly vain, but he was a proud man and still had a full head of hair, so when he had to shave his head to attach those electrodes, it literally crushed him. I mean you could almost see the life sucked out of him when he looked at himself in the mirror afterward. For the first time, I think it really struck him that he was sick, because now he actually looked sick. I had my head shaved right along side of him to show support, but it didn’t have the effect that I had hoped. In fact, it may have made him feel worse looking at my bald head too because he just shook his head and looked at me with sadness.

People can say what they want about the “quality of life,” but losing ones hair is a big deal, whether it’s from shaving or chemo. After that day, the day he got that “damn contraption,” (as he called it) he was never the same, never had the same vigor, and he seemed relegated to being sick. I think he had to shave his head twice a week, but he got an electric shaver and he said it only took a few minutes.
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