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Re: Steady_T post# 350439

Thursday, 02/10/2022 12:42:00 AM

Thursday, February 10, 2022 12:42:00 AM

Post# of 465844
Agreed. Once the price is set it’s very hard to raise it any higher than inflation rates, that’s precisely what got Martin Shkreli in trouble.

Just be patient and seek accelerated approval, price the drug in line with other rare diseases and negotiate the best deals with insurance companies.

My concern is that even with FDA approval, insurers will fight tooth and nail to not have to pay.

My other concern is that the Rett cost can’t stay at 200k/year if this is approved for Alzheimer’s at, say, $20/day. Rett patients will understandably ask for it off-label and will do all they can not to pay 10000x more than someone with Alzheimer’s is paying.
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