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Re: Chrisp5 post# 348064

Tuesday, 02/01/2022 4:26:19 PM

Tuesday, February 01, 2022 4:26:19 PM

Post# of 462168
It looks like the EXCELLENCE study on the clinical trials site still has the old outcome measures. If that has also been updated, it seems like any statement should also clarify the primary outcomes of this study.

Primary Outcome Measures :
RSBQ [ Time Frame: 12 weeks ]
Change from baseline to End of Treatment (EOT) in the Rett Syndrome Behaviour Questionnaire (RSBQ) Total score

Incidents of Adverse Events [ Time Frame: 12 weeks ]
Change from baseline to End of Treatment (EOT)

https://clinicaltrials.gov/ct2/show/NCT04304482
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