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TTTav66

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TTTav66

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Thursday, 01/20/2022 9:06:37 PM

Thursday, January 20, 2022 9:06:37 PM

Post# of 458278
March 11: Rett Syndrome Externally-Led Patient Focused Drug Development Meeting
https://rettpfdd.org/?fbclid=IwAR2zXbhSrmJ4m8awcLIa6lUsUG2g2mDkECEiYb2zkjsAy09AxNRU7MXQ3ic

The International Rett Syndrome Foundation and the Rett Syndrome Research Trust are hosting an Externally-Led Patient-Focused Drug Development meeting and invite you to attend. By signing up you will receive the link to a public meeting with the US Food and Drug Administration and other stakeholders including drug developers, where you will be able to share the impact of Rett syndrome on your child and family, your perspective on possible treatments, and how symptom improvements would affect your and your child’s quality of life. The FDA is especially interested in hearing from parents, caregivers, and family members from the United States.
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