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Re: blue finch post# 331027

Saturday, 09/25/2021 4:39:04 PM

Saturday, September 25, 2021 4:39:04 PM

Post# of 470076
The “figure it outon the back of a napkin” comment sure didnt seem like we would be charging $3,000 a year for Rett patients. Maybe he mentioned some number that I cant recall but I think he is very optimistic that this will be a good starting revenue generator. Would be nice once revenue really starts pouring in to reduce what we charge for Rare diseases. Just doesnt seem right to charge a high price given the cards they have been dealt and the family members struggles (which are blessings in disguise)!

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