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Friday, April 09, 2021 3:39:34 PM
17h ago
Matt here.... I hope everyone had a great Easter with family. It has been awhile since my last update. In this time, I have met with my Neurosurgeon,Dr. liau, and also my neuro-oncologist, Dr. Cloughesy, both at UCLA. I set up appts with both, as I wanted to have the benefit of hearing my situation and having a plan moving forward.
The plan: I have pulled out of the clinical Trial I was participating in. I did so Because while in it, I received all 3 dcvaxx shots and was left to wonder if I was also getting the trial drug, keytruda , or a placebo.today, I couldn’t tell you either way. Extreme fatigue and cognitive fog is what is hampering me right now, which can easily be attributed to the start of Avastin infusions. What’s Coming up....
2nd round of Avastin on the 15th. Back to UCLA on the 19th with my sister, Sarah, and our niece, Lauren Tarr. I’m looking forward to spending time with both of them. I will return home to hospice and Avastin infusions every other week. The Avastin is being offered Palliatively, so It is allowed on hospice . I’m hoping I am allowed to monitor the tumor with mri and if some treatment becomes available while I am still around, I can explore it, snd make hospice wait on me again. Thank you all for the continued thoughts and prayers as our family continues down this dark and unknown path.
All my love - Matt
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