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moosedogger

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moosedogger

Re: None

Friday, 02/05/2021 1:57:46 PM

Friday, February 05, 2021 1:57:46 PM

Post# of 17432
Lupus Foundation of America is incredibly lame.....

I did a search for Lupkynis:

https://www.lupus.org/search?_limit=10&_page=1&keywords=lupkynis&_sort=relevance&language=en

7 hits, but reading through them is very disappointing. Outdated, incomplete, inaccurate, etc.

It's sad that a major advocacy organization (that is presumably well funded), is doing such a piss poor job for Lupus Nephritis sufferers.

Someone needs to get them to improve the quality of their information


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