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Re: XenaLives post# 208043

Monday, 09/02/2019 12:20:04 PM

Monday, September 02, 2019 12:20:04 PM

Post# of 471830
I find this all very interesting having suffered spinal fractures last November for which I will be undergoing vertebroplasty surgery this coming Friday. As I have posted before, my husband suffers from Spinocerebellar
Ataxia, for which I am extremely hopeful that A2-73 will be beneficial. I was diagnosed with severe osteoporosis following the fractures and was put on Tevonate. I took it for six weeks during which my weight fell from 110 lbs to 93 lbs - I was so ill I found it nearly impossible to care for my husband or myself and though I would never be anywhere near normal again. I am now on Prolia injections , which also cause problems and I can't take the calcium at all. There is a lot of truth in this article - I would say I was at high risk of having spinal fractures from constantly lifting my husband who is twice my weight, and taking the age factor into account it would be more odd if there hadn't been consequences.
On behalf of all sufferers and carers out there, all I can say is I hope the wait will be worth it for our 'miracle' drug. I remain optimistic
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