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Wednesday, 01/10/2018 5:28:34 PM

Wednesday, January 10, 2018 5:28:34 PM

Post# of 462057
For what it is worth and only sharing with the intent to inform.

Had a lengthy call with IR today. I expressed my (our) shared frustration about the company's failure to initiate trials as affirmed and re-affirmed by the CEO.

IR spokesperson acknowledged that he understood why investors would be disappointed. Proceeded to tell me that he could not say more that has already been disclosed but reassured me (more than once) that nothing has materially changed, or else it would have been disclosed; rather the company is being extremely diligent in continuing to analyze the data to ensure that they recruit the right trial participants to significantly increase the probability of success.

I acknowledge that I (we) believe that this is the right approach and rather be slow and successful that fast and failed. However, we believe that a bit more transparency would be welcomed by us, retail investors, and institutions.

Expecting SOP I asked:
Q: Is the Rett trial delayed for the same reason? A: Could not say.
Being cautious about what is said as advised by legal counsel (SEC concerns).
Q: Has anything changed from what was communicated on last investors' call? same as above but added, nothing material has changed or else it would have been disclosed to the general public.
Q: Can we expect to hear news within days? weeks? months? A: Could not say (SEC).
Q: Is Dr. Missling at the JPM Healthcare Conference in SF? A: Yes. Not presenting but meeting with potential institutional investors.

In closing, I told him that I would share a brief summary of our discussion (we talked for about 20 minutes), and that my main take away is that we remain on track for trials to commence in the near future and that nothing has drastically changed from what is already know by all. He said that that was a fair assessment and thank me for the support and look forward to our next conversation from a more positive stand point.

I asked him to relay the message to Dr Missling that I (some of us) are generally pleased with the progress he has made but we also expect a bit more transparency and solid planning and execution.

GLT all longs.

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