Yes, I think we just about exhausted that discussion. Hopefully Harvey will throw us a bone at the upcoming meetings, I think its high time that we have some unexpected good news, lol.
I'm sure if the poster asked if it was ok to repost their experience on ihub they would certainly be appalled. From what I've seen in following these patient boards is they get very upset and feel their privacy has been violated when they find their posts reposted elsewhere. Some boards have considered adjusting to becoming private, invite only type sites after knuckleheads post on other sites (such as here or yahoo) and of course real idiots will start posting on their sites. I think it gains nothing reposting here. Follow the sites quietly.
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