I think we will probably have a California clinic end up being the lead clinic. This will cement our position with CIRM who may end up funding (indirectly) these trials which we should know much more the week after the 5th.
I found this on the Jules Stein web site:
Clinical Characterization, Genetic Testing, and Visual Function in Patients with Stargardt Disease
This is a natural history study of Stargardt disease. No treatment is currently available. The Institute is identifying and characterizing Stargardt patients and documenting their disease state using a broad range of clinical and functional tests. A major goal of this study is to find better ways to measure progression of the condition for future clinical trials that will test new therapies. Investigators will also look for the variations in the genes that are responsible for causing Stargardt disease and related conditions. Subjects are given the option of having their information entered into a database to be contacted should a treatment become available.
ACTC will need this info from all sites doing trials so as to place the proper patients as per FDA prtocols and agreements....
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