pegs, there is also another treatment related to stem cells that appears to be having some success under 'right to try'. Although I'm not sure if it is appropriate for your situation. It's over on the TSOI ihub board.
@pegs1 Wonderful news! I really hope that you manage to lead a normal life again. I know how it feels when you can't breathe ! ....and I'm not nearly as bad off as you are ! Well, I don't know if this is of interest to you ? Just read it once: https://www.nejm.org/doi/10.1056/NEJMc2000343 Contact: (He is a top-specialist in this field): Prof. Dr. Joachim Müller-Quernheim Medical Director Clinic for Pneumology University Hospital Freiburg (Germany, Europe) Telephone: Europe (?) Germany (49) 761 270-37060 Mail to: joachim.mueller-quernheim@uniklinik-freiburg.de Have a great day Claus