Nice post CP thank you for being on our side! I did my own research this weekend because I was afraid enrollment was not on track. I reached out to personal friends in Lebanon NH. Note I did not contact anyone directly involved in the trial. Let's just say everyone knows someone when you work in the Northeast hospital affiliation, I found out enrollment is ahead of schedule.
you are 100% correct! But if i were a patient i would search for every info i can get (not only from my doctor) - so for Germany: i think patients will also search/contact Charite (because it is extremely well known there) and you find "NSCLC" in the german texts.
So what can i/we do to make SUNRISE well known? (Facebook????)
IMO if the doctor channels the patient to the SOC (doce) and doesn't also bring up the Sunrise trial which is Bavi added to the SOC then he is guilty of negligence. I say this because Bavi has been shown to be safe and to not let the patient know that there is a potential treatment out there which is safe and worse case scenerio you are getting the SOC and best case you may get a CR or a 100% improvement in survival.
The patient has nothing to lose and everything to gain. If not brought up for discussion by the doctor and I was on a jury of a doctor being sued for malpractice I would vote guilty. It would be different if there were deadly side effects, but there aren't.
It is SOC + Bavi which is safe and shown in ph II to dramatically help the patient.
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