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Re: Flobewan post# 34084

Wednesday, 01/29/2014 3:16:52 PM

Wednesday, January 29, 2014 3:16:52 PM

Post# of 39180
Hi Flo, Orin is doing fine. He feels the same today as he did 5-10 yrs ago. Meaning he feels nothing has ever changed, but it has. His Left Ventricle of the heart, one of the most important chambers, it's the chamber that receives the Oxygenated blood from the lungs to that part of the heart, then the left ventricle pumps it back to the body. A normal pumping ejection fraction of the LV is 65% or above, Orin's is pushing out only 15-20%, yet his oxygen levels are at 100%, he is not winded at all with movement, he feels just fine. However he is at very high risk of what is called Sudden Cardiac Arrest/ Sudden Cardiac Death. That is why he is wearing an external Defibrillator now, and they most likely will place an internal in sometime soon.

We just need to get him back to work. There is no reason for him to be sitting around the home like this now. He needs to get back to what he loves doing, teaching, and get his mind off of all of this gloom and doom. His Heart Failure MD said he has HS kid's with sever Hear Failure just as bad as Orin's is, and they are playing HS Basketball. Point is, as long as you are feeling good, keep doing what you like to do.......

Charlie, now 9 months old. Eye's are changing from the blue tones to soft green. It all depends on the lighting.

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