From Yahoo Board.
This woman's husband is involved in the test...
Irishtrader52
I can't say much at this point although I am crying with you at the (temporary) decline because I want this drug out for all with as little delay as possible. I can say my husband, Patient 4, Slide 21, JPM slides, is doing great (same) after 9 months and would be close to dead - if not dead - otherwise if not in the Imelestat Trial. He might not have seen his first grandchild (girl) born on Thanksgiving Day (I am a very young grandmother!). I, for one, am glad he did not/is not taking JAK4 as would have done him little/no good - and if you Google search - you can find plenty of published trials not INCY funded that so state. So if anyone knows anyone with this ugly, debilitating, heartbreaking, slow, agonizing, dead-man walking disease, I strongly suggest you beg, borrow, and claw your way into an Imelestet Trial - and soon a lucky 150 people will be in the new multi-center trials. They are fortunate indeed. Check out the MF cancer patient discussion boards/blogs - and read posts from the desperate, dying ones not on Imelestat. Read about the ones in living hell after stem cell transplant - with about 1/2 still dying - and remember that is the only way to achieve CR other than Imelestat to date. I am sure there is good news ahead for all longs and I don't think this will be the same board when springtime blooms, if not sooner. Be patient - I was patient waiting every blood test/bone marrow test result the last 9 months. In the meantime, there is so much good discussion on this board - even including conjecture gatekeepers - so keep it up. Do not let fear stop you (but do your DD). Only 3% of all terminal cancer patients sign up for trials - because of fear. Arm B Imelestat dosing could have killed all 11 - but it didn't. Only 40% of all clinical trials are filed
"evil flourishes when good people fail to act"
