Hemispherx BioPharma (HEB)

[colorofmoney]

HEB - A letter from a CFS patient

http://www.hhs.gov/advcomcfs/meetings/pr...

I am writing to you as a patient. Nobody has asked me to send this to you and I am not
acting on anybody's behalf other than my own personal interest and health. Please DO
NOT share this information with Hemispherx Biopharma or any of their representatives, I
do not want them to know that I am writing to you. I merely want to ask if you will
please expedite the approval of Ampligen for the treatment of Chronic Fatigue
Syndrome.
XMRV retrovirus has been discovered, as published in Science Magazine in the that the
2.5 RNase L antiviral pathway (which is what Ampligen repaired in my body) is involved
in the repair of the antiviral pathway and that is what is broken in my body and others
with this same illness.
I have struggled, suffered, and been debilitated by Chronic Fatigue Syndrome for 23
years. One year before I first became ill, I was a classified top-secret word processor for
the Physical Science Laboratory at New Mexico State University. I was responsible for
typing large proposals of government contracts. Then, after that, I was working at a law
firm in Denver as a Word Processor. I became ill with the "flu" in 1986, and I had to quit
working.
I was a patient on the FDA cost-recovery program, AMP-511 study for 8 years, taking
ampligen by i.v. 400 mg. twice per week and I became incredibly well after being on this
medicine. It improved my health, my labs, and my life. I did not retain the same level of
health after discontinuing the medicine in 2004, and my life has been very difficult being
so ill since then.
I am delighted that the scientists and researchers have discovered such medical
breakthroughs as the XMRV retrovirus and it's correlation with the 2.5 RNaseL antiviral
pathway and now want you to please consider approving this drug for this disease that
has a specific ability to treat the problems with the anti-viral pathway and make so many
people better and able to return to work.
I am only 47 years old and although I have significant neurological damage and and
immune compromised system. At times I can hardly walk, cook dinner, or fight
infection. I have lost six teeth and hardly have any left in my mouth to chew, due to bone
infections. My gastrointestinal system does not digest food properly, and I have a painful
irritated bladder that does not empty correctly. I have headaches, body aches, and
inflammation disorder, even in the brain. But I can still type (given that I rest before and
after) and I want to plead for your help in approving this drug.
I will not benefit from the approval of Ampligen in any other way than to say that now
there is a therapy for a disease that exists. A retrovirus that took away my right to health
and infected many millions of people around the world. Please help America to be the
first to recognize and treat this horrendous virus and end the horror by approving
Ampligen.
with respect and admiration for all that you do,