Sunday, February 05, 2023 12:29:36 AM
Can you give me an update on aviptadil? Are they planning clinical trials this year for sarcoidosis? I didn't qualify for the Atyr Pharmaceuticals clinical trial. My forced vital capacity lung test was low. They wanted it at 50 & mine was at 40. I'll find out on Monday if I qualify for another clinical trial with Kinevant Therapeutics. But I feel that I won't qualify for it either. I saw the physician heading that trial yesterday. He wants to start me on a biologic (remicade). At this point I'll try anything! I'm hoping that maybe he can help me to get kinevant through expanded access. My own pulmonologist will not apply for expanded access of kinevant! He told me that he didn't feel comfortable prescribing a non-fda approved drug! I angrily told him that everything he has given me hasn't worked! That I'm going to die! He told me that he took an oath to do no harm. That he would do everything to prevent me from dieing. I don't believe him. He has exhausted all medications to treat me. I'm sorry for venting. I've been checking clinical trials.gov frequently. But I didn't see any trial for aviptadil. Any news is greatly appreciated.........
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