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Tuesday, December 07, 2021 8:38:26 AM
Her testimony:
"With Leronlimab effects, I played volleyball again for the first time in over 20 months! Leronlimab is one the cleanest drugs that treats longhaulers with no known liver damage, like similar great drugs must claim!
I’m out of the covid-19 wheelchair for good, although I still use my cane or walker as needed after tough physical therapy sessions, or just because my body still can’t handle life without Leronlimab.
I will have the chance to again receive the amazing help of the drug, Leronlimab, which has treated HIV patients successfully for 7 years now, following their trial completion.
March-May 2021: Leronlimab gave me back my brain like waking from a coma 2 1/2 days after receiving my first injections in Georgia! Then it gave me back my legs and feet. My blood could circulate fully to my toes again. I could feel the injection as it entered me, burning greatly upon entry, then benevolently changing things, cooling down my joints, from shoulder to knee, from knee to ankle, from ankle to red and angry Covid toes. My oxygen levels went up, and I went and sat in the sun for the first time since July 2020, because my sensory processing disorder just disappeared. Loud noises and lights didn’t hurt, and my body stopped attacking me from reactive viruses rampaging through my tissues and cells.
UPCOMING in January 2022: trial design CD 16/18/19
I’m in trial design CD 18 or CD 19, the group who received the drug last time (Sorry I can’t remember. Some issues have returned in full since I stopped receiving the drug months ago, waiting for the next stage.) There is also a placebo group of people who were in the trial last time and only received placebo. The last group will be the newcomers. The January 2022 trial includes 225 longhaulers, whereas the CD15 trial included only 52, many of whom were physicians and essential workers. 27 patients were in the drug group, and 27 in the placebo group.
Leronlimab 2022 Trial: placebo/350 mg Leronlimab/700 mg Leronlimab. That’s 66.66% chance of Leronlimab! Last time I only had a 50% chance, and had to drive to Georgia for it. I would drive for 20-30 minutes and then my feet and legs would go ice numb, so I would take a break for an hour and a half. I have accommodation buttons in my vehicle, like cruise control, seat warmers, and various things I worked my whole life to get, Not knowing I would need to use them in a disabled state. I got that vehicle a beautiful SUV, one month after originally contracting Covid.? So I would repeat this driving then resting strategy for four days, until I arrived in Georgia from Texas. When I got out of the driver seat, I had to move into my wheelchair, because standing up or moving or bending would cause me to pass out or my oxygen would drop too severely. My husband couldn’t take me because with my job loss, finances were extremely tight. I either figured out how to get there on my own, or I would have to drop out of the trial. The trial also offered to help me as they were able to, but finances are extremely limited and so if there are three things I need help with they will possibly help us one of those things like an emergency flight home because my family and kids were very stressed without me.
I received 700mg weekly for 8 weeks in March-May 2021, but I can’t play without pain, brain pressure, deep bone aches, and chest pain. With Leronlimab, I had basically eradicated my chest pain to being infinitesimal.
January 2022 the next trial continues, and being part of CD15, I am told I am still given a spot in this trial, as opposed to my 600 friends on the waiting list for the trial. I just have to remember there were only about 50 people in the last trial, so getting 225 Longhauler’s in this upcoming trial is a win.
For the Longhauler’s though, the only win is getting our old lives back. So let’s keep getting Leronlimab and then let’s get the others better! In the words of dear sweet and kind Dr. Christopher Recknor, let’s get the others better.
I am praying for an FDA approval after the trails are successful, because that is the only way most long haulers will be able to afford the drug."
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