THE MODEL IS BROKEN
91% of pancreatic cancer patients die within 5 years– often because the cancer is too advanced to treat by the time of diagnosis. An early detection test for pancreatic cancer would be the most effective weapon to save lives from this disease.
Pancreatic cancer is one example of the limitations of the current system to address deadly diseases with urgency. Despite decades of medical innovation, millions of Americans with fatal and debilitating conditions have seen no progress. The current path from basic science to applied research to commercial viability is too slow. Research is not getting to patients fast enough.
LEARN MORE ABOUT
PANCREATIC CANCER
DEMAND A NEW APPROACH
CodePurple advocates for HARPA – a Health Advanced Research Projects Agency – as the most promising vehicle to develop a pancreatic cancer detection test. HARPA, modeled after the spectacularly successful DARPA unit at the Department of Defense, would leverage federal research assets and private sector tools to build new capabilities for diseases that have not benefitted from the current system.
HARPA would tackle our most urgent medical challenges. An early detection test for pancreatic cancer would be a top priority.
PANCREATIC CANCER IS AN EMERGENCY THAT REQUIRES THIS TYPE OF INNOVATIVE, FOCUSED APPROACH. IT MUST BE A PRIORITY.
Congress passed the 21st Century Cures Act late in 2016. The legislation is designed to help accelerate medical product development and bring innovations and advances to patients who need them faster and more efficiently.
HARPA would deliver on that promise. The Suzanne Wright Foundation will continue to advocate for its creation. The research is sitting on shelves and HARPA will drive innovations that will save lives NOW! #RoadToHARPA
Launching HARPA
June 25, 2018
A segment from “The Patients Are Waiting: How HARPA Will Change Lives Now”
December 17, 2019
The NIH is in the business of understanding the biology of disease. They do not develop detection tests and they don’t cure disease.
Despite the lack of any progress with pancreatic cancer, they continue to chug along with the same approach. Any other business with the same failing results for 50 years would be forced to shut down or start over.
Lessons from business and years of autism work taught Bob Wright the best way THROUGH is AROUND. The question with this situation was, who else needed a new approach??
Our pancreatic cancer army would never be large enough to influence the change we need. ALS, Alzheimer’s, and glioblastoma have no early detection tests or curative treatments, either.
It was time to Demand A New Approach for the many conditions that do not benefit from the slow, conservative, bureaucratic status quo research model.
