Tuesday, June 12, 2018 4:41:54 PM
2016
Aug 19 - PET scan done due to pain in the abdomen.
Aug 22 - Results show one large tumor in adrenal gland. This is the first time there has been tumor activity while on the medications, indicating that the cancer is finding a way around the meds.
Sep 16 - Tumor in left adrenal gland removed surgically by Dr. Diego Muilenburg.
Dec 7 - PET scan. Dr. Urba called with the news that there are numerous tumors.
Dec 9 - Met with Dr. Urba and saw the scans with around 20 tumors from the face to the shins, some in soft tissue and others in bone. None in critical organs.
Dec 14 - MRI indicated no tumor activity in the brain. Dr. Diego removed one of the tumors on the chest for biopsy to help determine the next treatment.
Dec 28 - Happy 65th Birthday! Pain medications such as Oxycodone help relieve pain in hip and abdomen caused by tumors pressing on nerves in bones in the hip and spine. Biopsy showed high levels of PD-L1 which means Ketruda has a better chance of showing positive results.
Dec 29- Met with radiologist to do mapping for radiation to relieve pain in the hip and spine.
Dec 30 - First treatment of radiation causing initial increased pain and nausea.
2017
Jan 6 - 2nd treatment of radiation and 1st infusion using Ketruda and the clinical trial drug Galectin which in the lab has indicated a boost in positive results used along with Ketruda.
Jan 28 - 2nd infusion of Ketruda and Galectin. Pain in not as acute.
Feb 6 - Noticeable decrease in size of surface tumors!
Feb 17 - 3rd Infusion.
Mar 14 - 4th Infusion and feeling fine!
Mar 31 - CT Scan
Apr 3 - 5th Infusion and last with Galectin. Results of CT: All tumors in soft tissue are basically gone. There is a mass in the area where the tumor in the adrenal gland was removed. It is the about the same size as in the last scan, so while it hasn’t shrunk, it hasn’t grown. Lesions in the bone are harder to tell with a CT, but they obviously have shrunk since the pain has continued to decrease. Only a PET scan can indicate if there are still live cancer cells in the bones.
Side effects are minimal - just some skin rashes on his face and ears. Increased energy levels indicate that fatigue is related more to tumor activity than as a side effect of the Ketruda. AMAZING!!!
Apr 28 - 6th Infusion, this time using only Ketruda.
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