also regarding $srpt, the truth is coming out regarding their deceptive drug pricing. as it turns out, their average price for an average weight pt is more like 750K-$1M per year. when you think of that price for a drug with questionable efficacy, it seems completely unethical. In addition to barking at insurance companies, parents should be knocking down $srpt door to get them to cut the price by 75% or more until they have a confirmatory trial completed.
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