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Kallie

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Kallie

Re: mutungi34 post# 2289

Sunday, 04/24/2016 9:06:19 PM

Sunday, April 24, 2016 9:06:19 PM

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That is the truth I am all in too. One article explains how they take patients views into account under certain circumstances with a life or death situation. The last one denied had extreme toxicity the boys platelet count was way off kidney problems and numerous other issues; SRPT has none. I am 99% sure this will get approval from ADCOM tomorrow followed by approval in May. These kids have no other choice at the moment.
Good luck to us all here should be a good week. I can't believe this is going to last 10 hours tomorrow what a long day in a meeting
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