Calmare Therapeutics Inc (fka CTTC)

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Facebook post from Hand in Hand Agaianst RSD CRPS

https://www.facebook.com/groups/Calmarestories/permalink/727617074036234/
Christie Durham- Martin
15 hrs
So I will introduce myself. I'm Christie, and my 17 year old daughter has full body CRPS. She has suffered for years with it, but only recently got a diagnosis (this past July). I started looking frantically for something to help her. Everything I read was scary and disheartening. Then one late night of searching I ran into a link on a a UK page called burning nights. It is a CRPS information page. It was a link to Calmare NJ.
So we immediately started saving up the money to take her there. Within a a month of finding it, or maybe 5 weeks, we were there.
This is a decision we will never regret. She needed more than the standard 10 treatments, because her CRPS had spread all over her body, and had been ravaging her body organs. It had her heart, lungs, and throat spasming continuously 24 hours a day. Which made breathing a huge painful chore. Her spasming lungs would push all the air she tried so hard to sick in, right back out with violent convolutions. Her heart doing similar horrible things. The doctors up here at the children's pain management clinic, told me she needed nothing medication wise to help her. I was shocked as she was always gasping for air. She needed nothing for pain. Although she would frequently pass out from the pain. She would go blind, deaf, and not feel anything on the out side of her body. (On her skin, touch receptors ) but feel tearing muscle and acid and stabbing of knives ect. On the inside. They thought it would be best to put her in a 5 day a week program at the Seattle Children's Hospital, for 8 hours a day. 4 hours of phycical therapy, 2 aquatic therapy, 1 of school and 1 of lunch. She could barely walk by this point. Anything she did, showering, eating, walking, punished her for days to weeks.
So when I found calmare, I was thrilled. I called and talked with Dr. Cooney twice before I got there. I will never forget him saying to me," Just get your daughter here, and let me five her, her quality of life back." That hit home, because she had no quality of life at this point.
As I said she required more than 10 treatments. Does this bother me? No! Not at all. It makes since to me though. Her original injury that caused the problem, happened when she was a baby. So it had been growing with her. Literally growing right along side her growing body and brain. So we have been twice now. She has had great results. Her pain is now generally between a 1 to 3. Occasionally a 4. But very rarely. And she is stronger now too. She can do things that before she definitely could not. Before a shower would cause even worse flaring up. Sitting on the couch, would wear her out and cause a flare. Anything, and I mean anything would cause a flare. She is allergic to all chemicals, smoke, metal, and so so much more. All of that could set her off. Before we were in New Jersey for treatment, I really didn't know how or if, she would make it. But she did. And now she is so much better.
I know she has a long road ahead. We need to build her body back up, now that it is actually functioning again. I know I will probably have to bring her back for more treatments at some point. Because I really want to destroy the CRPS. I am still hoping that someday, she can achieve remission. But for now, I am so thankful that she is at a manageable pain level. That her spasming has stopped. And that we have a chance to build her body back up.
Calmare and Dr. Cooney, gave me my daughter back. I truly love him, for all the hard work and dedication he has for these suffering people.
Thanks for reading our story.