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Monday, May 11, 2015 12:56:26 PM
By the way, some of you were following Joanne's MF blog. She left the IMET trial during the FDA hold last year. She then took Interferon with bad side effects. Then, back on Jakafi that she was currently taking. Did better symptomatically for awhile but no disease modification. According to her blog, she now also has large B-cell lymphoma in addition to MF. There is no treatment for MF and serious chemo for lymphoma only complicates her illness further. Only hope for many MF patients is IMET. John who is not on any medication other than the fumes of Imetelstat is still stable and feeling good. No lifestyle changes or medical interventions. IMET definitely slowed disease progression but he would be even better (and safer) back on it. He does not have any other options if the disease progression accelerates again (not yet - but pushing the envelope now). I am guessing it bought him 15 months - the same amount of time he infused before it will get critical again. By the way, hay only covered the tip of the Jakafi side effects iceberg in his post
"evil flourishes when good people fail to act"
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