Clinuvel Pharmaceuticals (CLVLY)

[sante1]

SIGN THIS PETITION

https://www.change.org/p/patientenbeauftragter-der-bundesregierung-karl-josef-laumann-licht-f%C3%BCr-alle-therapie-f%C3%BCr-die-seltene-lichtkrankheit-epp-endlich-zug%C3%A4nglich-machen?recruiter=39596823&utm_source=share_petition&utm_medium=copylink



For this petition the EPP Patients in Germany need 1000 signatures to bring it under the attention of the German Parlement.
805 signatures are on the table right now,

You can imagine that those signatures of the 400 EPP Patients living in Germany isn't enough.
The sooner this petition is lying on the table of the German Parlement the sooner, the sooner those EPP Patients can walk in the sun.

The only thing you have to do is sign and bring in a legitme reason why Scenesse should be allowed to bring into the German Market


EMA and FDA should fuse together in my opinion. When I'm right there are living the same species on those contingents! The same procedures are followed.
The same quality of live we want for all the patients who are in desperate needs.

Stop this show. What's the FDA doing better then the EMA and the other way around?

Have you ever tried to imagine how you would feel yoursel, living every day indoors, social isolated?
Being jailed or living as an EPP Patient, what's the different?.

Let's all sign this petition. 1000 signatures we can do better then that. Let's get socialised.

Perhaps you know als some friends and relatives who will sign.

There are no boarders!