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Re: None

Friday, 03/11/2016 12:01:35 PM

Friday, March 11, 2016 12:01:35 PM

Post# of 15662
NEW BILL WOULD UP NIH/FDA FUNDING FOR NEGLECTED DISEASES

http://www.meaction.net/2016/03/10/new-bill-would-up-nihfda-funding-for-neglected-diseases/

With the FDA receiving a large chunk of these appropriations we could expect a beefing up of drug research for ME.

“(iv) research on new approaches to treatment of diseases using drugs, devices, or therapies that, at the time of distribution under paragraph (2), are not used or are underused.”
–S. 2624

Ampligen is a perfect example of a treatment that, either because of neglect or lack of awareness, has not been approved by the FDA even though it has been proven effective for many ME sufferers around the country. There is still no reliably effective treatment for ME, even Ampligen falls short on most accounts, but these new funds would be directed at finding such treatments and approving them for use quickly by eliminating a lot of red tape.